Funds to help youth with rare disorder

Sue Guinn Legg • Apr 18, 2013 at 9:01 AM

Friends of Josh Adcock, an 8-year-old Sulphur Springs boy with a rare genetic disorder who is battling kidney failure and an infection that has kept his family at the children’s hospital at Vanderbilt University Medical Center since September, will be at The Frosty Parrot on West State of Franklin Road Saturday with frozen yogurt, tribute T-shirts and inflatable slides and attractions to help Josh’s family with expenses.

Diagnosed at age 3 with Schimke immuno-osseous dysplasia, an extremely rare and progressive condition characterized short stature, kidney disease and immune system deficiencies, Josh has overcome a host of debilitating illnesses over the years, including a cancerous tumor in his sinuses for which he wrapped up the last of 33 radiation treatments in November.

He’s cancer free but a lingering infection and frightening round of respiratory distress has made his past month at Vanderbilt one of the most difficult he’s endured. He remains in need of kidney transplant but at this point, his dad said, the transplant is on hold until Josh regains his strength.

“It’s his overall health, the big picture, day to day trying to get stronger,” Terry Adcock said on Wednesday. “God and Josh are writing their own story and we’re just staying with them to see what that story is going to be.”

Terry and Josh’s mom Tammy and his big brother Jake are now living near Vanderbilt and also using the Ronald McDonald House close to the children’s hospital when needed. Terry is working remotely by computer. On Wednesday, he sent his family’s thanks to the many people at home who have held benefits and supported them with prayers and encouragement.

Saturday from 6-10 p.m. Boone Trail Baptist Church and The Frosty Parrot frozen yogurt shop, located next door to Earth Fair at 1735 W. State of Franklin Road, will host yet another benefit to help the family. The church will bring blow-up slides and other inflatables for children. The shop will donate 20 percent of its sales. Family friend Karen Hubbs will sell T-shirts designed in tribute to Josh’s courage from which all proceeds will go to Josh’s medical expenses.

Terry encouraged everyone to come out for The Frosty Parrot event. “God will provide for us,” he said. “So many folks have done things to help us ... our church and other people. We’ve been truly blessed.”

For those who can’t attend T-shirts may be ordered online www.joshadcock.com. Regular updates from the Adcock family can be found online at www.caringbridge.org/visit/joshadcock/mystory.

The Oaks Castle, South Roan Street, will host “An Enchantingly Sweet Evening” to benefit The Arc of Washington County on Saturday from 5-8 p.m.

The night will feature decadent chocolate treats, a benefit auction and live entertainment. Tickets are $10 in advance or $15 at the door. All proceeds will be used to benefit individuals with disabilities served by The Arc. For tickets or more information call The Arc office at 928-9362.

Professional photo sessions for children, their siblings and their pets to benefit Autism Speaks will be conducted by appointment Saturday at the Mountcastle Centre.

Hosted by Picsee Studio of Kingsport, the “Sidekicks” photo event is being held in conjunction with April’s Autism Awareness Month. Fifteen-minute photo sessions, an online gallery of 5-10 images and one free digital photo will be available to all children, including those with disabilities whose families may not be able to afford professional photographs.

Slots are limited and reservation are required. Sessions may be reserved by contacting the studio at 230-8047 or infot@picseestudio.com.

Autism Speaks in a nonprofit organization that provides funding for medical research and awareness of autism spectrum disorders and advocacy for individuals with autism and their families. More information about the organization is available online at www.autismspeaks.org

Mountain View Baptist Church and OmniSource will conduct a scrap metal drive Saturday to help fund the church’s youth mission trip to New Orleans.

Donated items may be dropped off from 9 a.m. to 4 p.m. at the church, located beside Winged Deer Park at 4005 Bristol Highway. Or, pick up may be scheduled by calling the church at 282-3262. A complete list of acceptable donations can be found at the church’s website at mtnviewbaptist.com.

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